Independence and inclusion will mean something different for every older adult with CP. For some, independence may mean being able to physically do as much as possible by themselves, and for others, independence is about feeling in control or in charge of the things happening in their lives.

Inclusion means treating every person as a valuable and capable member of society, regardless of differences. We all have the right to live free from unnecessary restrictions, to make choices about our lives, to have those choices respected, and to feel included and listened to.

For older adults with CP, barriers need to be overcome so you can participate in meaningful ways, including for:

• continuing to work or considering retirement
• living independently
• socialising
• fitness and leisure activities.

You may be well supported by your family, friends and healthcare team to set your goals, adapt to change and make plans in your life. However, you may feel  your family members and carers are overprotective at times. If you’re looking to maintain your independence and be included, let them know when you feel you’re not being listened to, or if you’re not being given the chance to make decisions.

Sometimes, the desire to be more independent can make asking for help a bit difficult. It is worth remembering that:

• older adults with CP who want to do everything themselves, without support, often find it harder to cope with changes, and experience more soreness and fatigue than those who accept help
• wear and tear on the body generally appears to be less in those who accept help, compared to those who don’t
• those who accept help often have more energy to do the things they enjoy and to socialise.

If you are not working, or you are considering retiring, there are options for a regular income or reduced rates for some services. Visit the Australian Government’s Services Australia website for details about payments you may be eligible for, including:

• the Disability Support Pension
• a Health Care Card
• regular unemployment benefits
• help with living costs
• a carer allowance.

As you get older and start thinking about retirement or your living arrangements, there are services available to help you maintain your independence and complete your daily tasks.

Some of these include help with:

• transfers
• personal care
• meal preparation and assistance
• general household management
• cleaning
• gardening
• day-to-day decisions.

If you’re thinking about aged care options, such as accessing care in your home, after-hospital care, respite care or moving into an aged care home, there are many things to consider. Your healthcare team can help you with the information and support you need to make decisions that are right for you.

There may also be a range of other things relating to independence or inclusion that you would like to receive support for. This could include counselling, financial and legal advice, or advocacy.

Advocacy agencies can help you to find your voice, to be independent, to choose what you want, and to take steps to achieve your goals.

For a list of agencies that can help with advocacy and legal support, visit the Disability Advocacy Finder on the Ask Izzy website.

Some of this information is provided and produced courtesy of The Future Thinking Project, Ability WA.